My scooter.


I wish I could put everyone in a scooter for a day. Then send them into all the expensive clothing stores, jewelry stores, restaurants. Then send them into target and Walmart. I wish everyone could see what it feels like to need to use a scooter. As you can see in the first picture, if you go to a party where everyone is standing then your neck will be craned all night looking up, but hey at least you have your own chair. As you can see though, I am at the perfect level for hands. I am at the level of a 5 year old and so I am often pat and touched as if I were one. Most of the time it is a gentle and kind gesture. But more than once have I been pat on the shoulder or the head while strolling through the mall as if I were a dog. Nice stores like Ann Taylor have their employees glare in hopes you won’t be contagious or contaminating their merchandise. Nice restaurants want to stick your scooter in the back so it isn’t in the way AKA so it looks nice when other patrons come in. Target and Walmart are another story. No one will move when you are coming down the isle. People just look at me and won’t even scoot over so I can get by. They side eye me as an inconvenience that they will not be bothered by. I mean really people, step to the fucking side, it’s not like I’m asking you to actually help me!!!! The funny thing is, when I am in my scooter, I don’t even realize or think about my differences. People often remind me though. I am just rollin along on my merry way minding my own business and trying to just be normal. The second picture was taken shortly after I was diagnosed with the muscle disease. Being pat got old really quickly so then the sign was brought into the picture. I added “or my scooter ” because people also like to lounge and lean on my scooter as if it were a wall they can brace themselves on. It is an extension of myself so it is invasive and unsafe actually to have anyone leaning on my scooter. 

I won’t even delve into the process of opening doors, going into dirty bathrooms, or not being able to reach anything! It is an experience that in 11 years I am now completely used to and un phased by all remarks, comments, or discrimination. BUT that is only because I have finally found my voice. In the beginning days I felt very small and very insignificant and as if I needed to conform to other’s ideas of how I needed to be. That was the abused part of me that had no voice. Fortunately that part is gone and I have no problem standing up for myself so I nolonger need the sign. But just incase you didn’t know, if you do see a person in a scooter, don’t pat them. We really don’t like that at all. 

15 thoughts on “My scooter.

  1. I promise not to pat your head! 🙂 I was on crutches for over two years and had no help. I only had to use a scooter in the grocery store; but that was cool- SO much easier than trying to push a cart; which I had to do many a time. I am impressed with your strength and humor. Hang in there!

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  2. Well, I haven’t been patted on the head, but I have been ignored – not in people’s line of sight, I find they tend to overlook the scooter. Doors that are not accessible is a pet peeve – what is that? Bathroom is accessible if you can get in.

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  3. I often think of what people in situations like yours must think when they go into a public restroom and are faced with urine all over the seats from other women squatting over the toilets. Not everyone is able to squat, and it must be awful. I can’t recall ever thinking about patting someone, but thank you for sharing the world from a different perspective, as these are some things I’ve never even put thought into…but will now.

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    • Ah man I used to LOVE to squat on the toilet. Now my quads have no strength for it. But even when I did, if I peed on the seat, I’d wipe it off with toilet paper. And there is ALWAYS pee on the seat. Fortunately, in the 11 years I’ve been putting my butt directly on the seat I’ve never caught any disastrous disease!!!!!! So squatters be advised, just sit 🙂 but yeah, the bathrooms are nasty and then I have to come home and soak my tires in alcohol before driving in my house. Because I’ve driven through grease, spit, urine, and who knows what else. Fortunately, with my muscle disease I have issues walking distance but I rarely need it in my house so if need be the scooter stays in the garage.whts upsetting is if I know I will need it in the house and it is contaminated with germs. Having OCD about germs and needing a scooter just don’t mesh well

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  4. Ok that’s weird that people do that. As if you become non-human while in the scooter. I can’t imagine it’s much different than a wheelchair, though correct me if I’m wrong.

    I used to be a home health aid for a woman who had CP and she was in wheel chair. One of those battery powered ones that she could work using her left hand slightly to move a lever to steer it.

    People’s actions you’re describing come across as condescending as well as a bit strange. Leaning on your scooter? Who does that?

    And although I don’t need a chair or a scooter I totally relate to that rudeness of not moving. People are unbelievable in that way. I see it all the time. It’s some weird sense of entitlement like they own the aisle or something. Ugh!

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    • Yes, it is like an electric wheelchair. As they are talking to me they rest their hand on the back of it and lean. It is very odd. Very very odd but many people do it if they are standing next to me.

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