14 thoughts on “To clear your mind…2

    • Thank you!!! We had such a good day!!! I got some good pictures that day. I’m debating on getting a macro lens? Or some other lens. Ok well I’m not debating my husband is because he is now enjoying all of our outings and wants to see what else i can get with a different lens. It is so much fun.
      I am just now recovering from rocky mountain spotted fever. Got it the day before my birthday and was like eh screw it I’m going out anyway and I’m so glad I did.

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      • Omg RMSF?? You poor dear!! πŸ’πŸ’. I’m so happy you’re saying screw it and going out anyway πŸ’ͺπŸΌπŸ‘πŸΌ. You didn’t let it win. I admire you so much β€οΈπŸ’“β€οΈ

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      • It was a bear of an illness!!! I mean apparently having lyme disease wasn’t enough. Nope. I needed ANOTHER tick to get ahold of me. So no way was I going to let that sucker win

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      • Oh man 😳. I also hear that RMSF is a common Lyme co-infection. That stinks that you got bitten again! Dang, those ticks are ruthless. I’m so glad this recovery went smoother; I hope you’re able to recover from Lyme, too πŸ™πŸ™πŸ±πŸŽπŸΎπŸŒ·β€οΈ

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      • I got RMSF when I was 18 years old. I had no idea a person could get it twice. Well apparently I was wrong. Because everything says that is what I got so proof is in the…well pictures…that I will never post of my scary looking self. I just need to tolerate the antibiotics for a month. It is a coinfection yes. Like with Lyme you can get also bartonella and a slew of other things. I hate that I know so much about Lyme. I’m skeptical about a total cure for it. I mean after 4 years of treatment I entered a study where a scientist looked at my blood and found spirochetes in my blood!!! Still!!! So who knows where else those guys are hiding, setting up camp, building nice biofilms that keep them from getting killed by antibiotics.

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      • Oh man! Girl I’m so sorry! Yep, Bartonella, Babesia, Anaplasma, Erlichia, all of these scary things. As if the Borellia wasn’t enough! 😳😳. I’m skeptical about a total cure, too. There are a lot of people peddling a lot of remedies, making a lot of claims, but my question is, are they getting tested before and after, with good testing (like Igenix) to verify that it’s actually gone? And yeah, these little monsters change form when hit with antibiotics; they go from spiral shape to a round, cystic shape, which makes them inactive (which is why people feel better on antibiotics) but it doesn’t let the antibiotics penetrate them (which lets them survive). And as soon as the antibiotics are finished, they unravel again! And then the symptoms come back πŸ˜–. I think they hide everywhere – especially muscle tissue, but probably elsewhere, too. I wrote a 30-some page ebook about Lyme for my patients (inspired by a friend with chronic Lyme in MN, where it’s also rampant), and had to do a lot of research (which I didn’t mind doing at all, but I was devastated by what I learned!), (and I’m happy to share it with you if you like! I can email it to you; just email me by my Contact page and that’ll give me your email 😘). I’m wishing you the very best of luck, girl! There’s gotta be something out there that kills this thing, and I’m determined to find it πŸ’ͺπŸΌπŸ’—πŸ’—πŸ’—πŸ˜˜

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      • YES!!! Plus since my immunity is low then I get other things. Odd viruses like mycoplasma pneumonie and coxackie virus and just a slew of other shit. Then my titers for epstein bar virus are through the roof because the whole body goes OH we will just reactivated everything! So I have a stack of herbs and supplements that I stay on and rotate but I really hate the antibiotics. I would avoid them if RMSF were not so dangerous.
        I also have chronic lyme and was part of this study at UNF and it showed what you are talking about. There are also cysts type things that show up on my scans that they have built to live safely in their biofilm.
        I did antibiotics for 2 years. Then I did the cowden protocol for 2 years and then tossed in every new thing that came along from stevia to monolaurin to blah blah blah. My doctor reallly thinks my seizures are due to lyme. That’s pretty cool you write that for your friend!!!!! Wow. What a friend you are. So you do know the hype behind the latest fix it. But being in that study after all this time and treatment and having him still see them alive in my blood just devastated me. Because…is that really what’s behind why my muscle disease is so rapid. Is the lyme inbeded in the muscles. Is that why my heart rate they cannot lower. All these things they will know on autopsy, I mean honestly, they will. But until then I will just keep trying and trying. She now wants me to try naltrexone in a low dose as it is thought to reboot the immune system and help it help me fight the lyme. It’s sitting on my counter now. I stare at it!!!! After getting RMSF I just got so defeated I thought yeah after 30 more days of doxycycline and destroying my intestinal flora, and yep i take all that probiotic shit but it still screws you up, then i will revisit the naltrexone. I would love to read your ebook. Email that baby to me!!!! My email is bethanykays@hotmail.com
        If you find something miraculous let me know!!!!!
        I tried acupuncture and chinese medicine and homeopathic medicine and some holistic medicine guy and got hair samples done and heavy metal testing done and everything that keeps your body from doing what it should. It is never fucking ending I’m telling you. Tell your friend my heart goes out to her 100 percent!!!!!

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      • Sure thing, girl! I will get that too you ASAP. It’s at my office (doh!), but I will be in the office Thursday morning and I will send it then. I think you’ll like it – I cite about 130? 160? references, all from “respectable” sources, and I also take on, head-to-head, the ones who (still??) try to claim that chronic Lyme is “not real” πŸ™„πŸ™„πŸ˜‘. Of course it’s real! And there have been papers referencing its evidence for over 20 years! Gah lol. Omg I so feel for you 😘😘😘. Good on you for trying all you’ve tried and for taking part in the research studies and whatnot. I think I told her once about your blog and I’ll tell her again πŸ‘πŸΌ. I don’t have the labs to prove it yet, but I would bet the farm that she’s got autoimmunity that is originally rooted in Lyme disease. It’s just this “gift” that keeps on “giving”. I’m with you, girl πŸ’—. I’m listening. And I hear you πŸ‘πŸΌ. And yep, I’ll share anything I hear or find πŸ’žπŸ’ž

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      • Ugh the gift of Lyme.so true. It lowers the fighter cells cd-57 and then everything goes to shit. It’s amazing though because I can spot it. I NEVER used to ask, only because I get sick of people asking me stupid questions like “have you tried massage” um duh yes, but I ask ” Have you been tested with igenix for lyme” because so many have these VAST symptoms from head fog, fatigue, muscle weakness, dizziness, sore throat. So they get labeled fibromyalgia (which it may be) or anxiety (which is definitively a component because Lyme makes anxiety terrrible especially the die off) but Lyme is underdiagnosed.
        Can’t wait to read your paper!
        My should see my basket of stash. It takes up an entire counter. I feel for your friend. It is a frustrating road for sure and blown off and disregarded. The problem too is just that one igenix lyme test is $300. After spending 100,000 over 10 years of “what do I have” that seems like nothing but then it seems like REALLY another chunk of cash? But to get an answer is a good thing. To get an answer of Lyme sucks. Because right now, I just don’t believe we are near a cure. I’m holding it at bay

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      • Totally πŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ˜˜πŸ˜˜β€οΈ. You’re doing all you can, and honestly if I were in your situation, I’d be taking the same route–keeping it at bay is probably the best thing one can do right now. Yeah, there are things that help it, but I’m not sure I’ve ever seen a chronic case cured fully before. Shorter stints, yes, but not over about 3 months yet. The people making claims and telling these “success stories” about how they cured their chronic Lyme have not actually been tested reliably (definitely not after, and usually not before, either), and they’re almost always selling something. I have to wonder if their stories are even real, if they ever even had long-term Lyme in the first place, because the stories ring hollow, much different from the people I’ve personally known with chronic Lyme. And it does often get really expensive to chase it; I would want to be at least reasonably sure that something had a good chance of working before trying yet more stuff. I’m just disgusted with the peddlers out there, taking advantage of a suffering population. Grrrrr πŸ˜‘πŸ’—πŸ’—

        (Wow, I’m ranty today lol. Sorry about that! 😘. But the whole thing–what some people do to others–makes my blood boil) 🌺🌺🌺

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      • The lyme herbs are 150.00 a month but they’d do keep it at bay. There are thousands on Lyme boards and Lyme groups with people desperate with symptoms who have answers and cannot afford any of the treatment. Originally they wanted me to have a picline. I said no way. I had already read the infections the possibilities and the destruction of the gut flora. I’m disgusted with the peddlers too. The new cure all. It’s sad for people who have been sick so long. Had I known then what I know now I never wouldhave done antibiotics for 2 years so late in the game.
        I’m only doign them now for the RMSF bc I know it’s the only treatment and it took a week for me to lift my leg at the tick bite site.
        Long term lyme. We are a bit screwed. Had I been tested when I was 18 they would have known. But this late…too late

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      • Ps igenix is the ONLY way to go. My doctor won’t use anything else. I always try to tell people PLEASE go through igenix for all of the testing. It will break the bank but it is worth it

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